Description

We are a registered, Australian-based not for profit charity dedicated to providing education and emotional support to families of children born with Hirschsprung’s disease, imperforate anus/ano-rectal malformations and associated conditions.
Hirschsprung’s disease (HSCR) and Imperforate anus (ARM) are rare congenital (at birth) conditions that affect one in every 5000 live births. When parents first learn that their child has HSCR/ARM they are naturally distressed, it can be confronting to be faced with the uncertainty of conditions they may not have heard of before. From that first moment to sharing the everyday challenges of bringing up a child with HSCR/ARM, we are here to offer friendship, support and information through:

  • networking support from experienced families caring for a child with HSCR/ARM
  • phone/email support
  • private social media access to members
  • information resources
  • back issues of Segments newsletters
  • access to our medical and Para-medical advisory board
  • BGK conferences held in Sydney and video-linked to other states.

We welcome membership from new parents, grandparents, health professionals and anyone who has an interest in HSCR/ARM. Contact us or take a look around our website to find out how we can help you.

Service Areas

Gastroenterology & Hepatology (Liver), Child & Family

Website

Contact Details

Postal Address

PO Box 40
Oakdale
NSW 2570
Australia

This page was last updated at 12:14PM on July 22, 2019.