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New Zealand Organisation for Rare Disorders (NZORD)
National Patient Support Group Service
NZORD welcomes the full extended (patients, family, friends, clinicians and researchers) rare disease community as well as the common disease community by providing support, resources, advocacy and engaging in policy matters that affect the health of all New Zealanders.
Information is one of the best resources a newly diagnosed patient and their family can be given access to. Being diagnosed with a rare disease can be isolating and it is hard to know where to turn after the initial diagnosis.
One of NZORD’s priorities is to maintain and improve the information we offer to anyone seeking information about rare disorders, and assisting those patients and their families to find support.
Much of the information contained on our website is based on the needs experienced by families embarking on a journey that may be similar to your own, or a close family member or a friend.
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