Today

8:30 AM to 5:30 PM.

Description

New Zealand Pulmonary Arterial Hypertension is a registered not-for-profit Trust and Support Group, registered for the whole of New Zealand and currently operating from Auckland. We provide support for patients with Pulmonary Arterial Hypertension (PAH) plus Scleroderma and raise awareness of these diseases in the community.

The NZPAH Support Group meets regularly on or about eight weekly intervals bringing support, comfort and quality of life following diagnosis for patients, their family members and caregivers. Like to know more – than join us for life-changing skills and telephone buddy formation.

You are NOT alone - There are people who care

There IS "Quality of Life" post-diagnosis

Please refer to our Support Group Meeting Dates below for more information:

  • 2020 Group Meeting dates to be published in mid-December 2019

PAH is an incurable disorder which affects the lungs and heart. It is characterised by high blood pressure in the arteries of the lungs and can lead to heart failure. It is a condition that still presents General Practitioners with difficulty in diagnosis and identification, simply because the symptoms are very similar to a range of ailments including:

  • Asthma
  • Anxiety
  • Bronchitis
  • Emphysema
  • Heart disease
  • Blood clots to the lungs

But it could be PAH.

Don’t pretend breathlessness is “I’m just a little unfit, it’s nothing, it’ll go away. I’ll be okay in the morning." Be sure to have your GP refer you to a PAH Specialist/Rheumatologist in your DHB district for an examination and associated tests to be assured one way or the other. Early diagnosis is most essential for a better 'Quality of LIfe' with medication.

This Support Group DOES NOT impose any Membership Fee.

Click Here to view our videos and useful links.

If you would like more information please call or email us.

Facebook: www.facebook.com/groups/NZPAH

Service Areas

Cardiovascular, Respiratory, Disability, Older Persons, Mental Health

Hours

8:30 AM to 5:30 PM.

Mon – Sun 8:30 AM – 5:30 PM

PLEASE NOTE: The above Service Areas are NON-CLINICAL - LIFE SKILLS AWARENESS ONLY

NZPAH / Scleroderma is a SUPPORT GROUP and does not answer questions of a Clinical Nature. Our Support is primarily based on proven "LIFE SKILLS" post-diagnosis gathered from past and current Members. These enablers are in use daily and are a welcomed relief to all members. As time goes on - These enablers continue to grow, expand thereby improving the Quality of Live for our valued Members.

If you are placed on OXYGEN THERAPY, there is so much to learn about this system, particularly if you intend to fly somewhere soon. We can help you with that!

As a result of our many meetings, energy-saving technics have also been discovered, developed and tested over time. These are and have been most welcomed by so many  

Like to know more - join us at our Support Group meetings or simply email us with your questions, we will see if we can be of service to you. Every little bit of help is a Blessing to our Members.

Services

2020 Meeting Calendar:

The 2020 Calendar will be finalised by mid-December 2019; WOW - What a year eh! 2020 - Watch this space.

PDF

Contact Details

RESPIRATORY SUPPORT GROUP meetings are held every 8 weeks for the following:- (Combined Group)

  • Scleroderma
  • Lupus
  • Sjogren's Syndrome
  • Raynaud's Phenomenon
  • Pulmonary Arterial Hypertension
  • Others with breathing difficulties

Please refer to our Support Group Meeting Dates below for more information:

  • 2020 Group Meeting Dates will be published Mid December 2019

Please register by telephone or by email - new patients and their carers are most welcome.

Venue: 327a Whangarata Rd, Tuakau 2694
Time: 11:00am to 2:30pm

Please bring a plate for a light lunch - Thank you.

Hey! Just want to chat to consider joining us? No Worries - We ALL breathe the same air, some just find it SO very hard to talk about this or that. With our group, YOU will not feel uncomfortable at all.

Postal Address

New Zealand Pulmonary Arterial Hypertension Trust
Attention: Allan J Edmondson
327a Whangarata Road
RD4 Tuakau
Auckland 2694
New Zealand

This page was last updated at 11:23AM on November 20, 2019.