The New Zealand Organisation for Rare Disorders (NZORD) was established in September 2000, and changed its name to Rare Disorders NZ (RDNZ) in 2019. RDNZ offers a central starting point for patients and families affected by rare disorders, and helps families, patients and healthcare providers find essential information and support groups.

RDNZ is the only umbrella group for rare disorders in New Zealand and provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition.

Service Areas

Allergy & Immunology, Blood Disorders, Cancer, Cardiovascular, Child & Family, Child & Youth, Dermatology, Disability, Endocrinology & Diabetes, ENT (Ear, Nose & Throat), Gastroenterology & Hepatology (Liver), Gynaecology, Kidney, Mental Health, Neurology, Obstetrics & Maternity, Older Persons, Ophthalmology, Orthopaedic, Plastic Surgery, Respiratory, Rheumatology


Information & Resources, Education Programmes, Research Programmes, Advocacy

Contact Details

To find a support group please click here.

Postal Address

PO Box 14-313
Wellington 6241

This page was last updated at 11:58AM on December 5, 2019.