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Cardiac Inherited Diseases Service

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Description

What is CIDG and CIDRNZ?

CIDG is a national network of specialist clinicians and scientists working to prevent sudden death due to inherited heart diseases.  The Cardiac Inherited Disease Registry N.Z. (CIDRNZ) is an ethically approved national clinical registry designed to track registrants (individuals and families with known cardiac inherited disease) or cases of young sudden death typically 1 - 40 yrs (referred by the Forensic Pathologists/Coroner). 

Each CIDG member has their own employing hospital or District Health Board. Aside from the coordinators based within ADHB, Waikato DHB and Capital and Coast DHB, CIDG does not receive individual funding, but works within existing clinical systems to facilitate clinical screening for families across the country.

Which conditions does CIDG deal with?

The commonest familial heart conditions are long QT syndrome (LQTS), Brugada syndrome (BRS) and Hypertrophic Cardiomyopathy (HCM). CIDG also coordinates nationally the family and genetic investigation for sudden unexpected natural deaths in 1-40 year olds. CIDG works closely with the national forensic and coronial services.

Who leads CIDG?

The national clinical leader is Professor Jon Skinner, children's heart rhythm specialist, at Starship Children's Hospital.

Which doctors belong to CIDG?

A group of Clinicians from each region belong to CIDG. The majority are Cardiologists (heart doctors), Paediatricians, Geneticists and Pathologists. A current list is available on the CIDG website:www.cidg.org.nz 

Is this just for children?

No, CIDG facilitates family screening for all family members. The heart tests are usually performed locally, in your local hospital. Children sometimes have specialised heart tests at the Starship Hospital and test results can be copied and sent to other specialists for opinion.

Consultants

Hours

CIDG Team support: 9 am - 5 pm Monday to Friday
CIDG Clinical Coordinator: 8 am - 4 pm Monday to Friday

Referral Expectations

Anybody can refer to CIDG for advice, including the patients themselves. The coordinator will help them link to a local clinician with the necessary expertise.  We hold a weekly case meeting and discuss cases from around New Zealand, to provide Specialist opinion and advice.

Pathologists dealing with a sudden death who require advice should call Dr. Skinner in the first instance via the hospital switch board, or relay a question via the Clinical Coordinator (jackiec@adhb.govt.nz); information for review can be sent to our team support/administrator ().

Any clinician is welcome to phone or write for advice regarding their patients or families. It is almost always appropriate for the patient to be seen by a local specialist first.

Regarding written requests, please include as much detail about the family and the clinical presentation, including test results (particularly ECGs) necessary to permit an informed response.

Common Conditions / Procedures / Treatments

  • Electrocardiogram (ECG)

    An ECG is a recording of the heart's electrical activity.… More

  • Exercise ECG or Exercise Test (ETT)

    An ECG done when resting may be normal even when heart problems are present. … More

  • Echocardiogram

    Echocardiography is also referred to as cardiac ultrasound. This test is performed by a specially trained technician.… More

  • Cardiac Arrhythmias

    The heart rate is controlled by a complex electrical system within the heart muscle which drives it to go faster when you exert yourself and slower when you rest.  A number of conditions can affect the heart rate or rhythm.  Heart rate simply refers to how fast the heart is… More

  • Genetic Testing

    In some forms of inherited heart diseases, genetic tests can be helpful when trying to identify which family members may be at risk of developing or carrying the condition.… More

Contact Details

Starship Child Health

Central Auckland

Louise Monson CIDG team support administrator (General Enquiries)

Jackie Crawford CIDG National Clinical Coordinator (Clinical Enquiries)

Cellphone: 021 825 389

Website www.cidg.org.nz

2 Park Road
Grafton
Auckland 1023

Information about this location

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Street Address

2 Park Road
Grafton
Auckland 1023

Postal Address

Jackie Crawford
Cardiac Inherited Disease Coordinator
Cardiac Inherited Disease Registry N.Z.
Level 3 Cardiac Services Dept
Auckland Hospital
P.O. Box 92189
Auckland 1030
New Zealand

This page was last updated at 1:57PM on June 6, 2017. This information is reviewed and edited by Cardiac Inherited Diseases Service.